Day zero and a couple of heroes

Day Zero…I woke at 6.30 as my phone buzzed. It was Dan, he couldn’t sleep! I was ominously calm at this point. I felt this was what the last few months and especially the last 10 days had been about. Herbie woke happy, film crews arrived and it was time to head to Lion Ward & meet Dan and Rufus.

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I was met by a calm Rufus, and I felt heartened that he was going to rise to the occasion, taking things like the MRSA swab etc in his stride. However as the time to go to theatre Drew closer he became agitated and upset. We tried to placate him with gifts but it was clear that he was beyond that and scared.
I will be honest, I was overwhelmed with guilt. I knew I had to put him through this but I felt sad that he had to do it when he was clearly afraid.
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I left Dan and Rufus at the doors to theatre 3 and slipped away before Rufus could see me go (or how upset I was).
Dan came out, Rufus was ready for the harvest and we headed quietly up to Robin Ward to be with Herbie.
Being with Herbie helped to pass the time away from Rufus at first, the daily routine still needed doing and a new iv had been added in so we had plenty to occupy us. The bloods came back still looking good.
HB 87
WCC 1.74
Neutrophils 1.64
Lymphocytes 0.02
Platelets 312
Danielle, the supply teacher who covers on Friday , arrived and so Dan I went to The Lagoon for a drink . The pressure became too much, having said goodbye at 8.45 and to still be waiting at 10.35 am we decided to head back to the ward.
Finally we got called and set off to recovery.
Ru was very pale, sleepy and vomited but we were told all had gone to plan. We let him sleep it off.
I returned to Herbie to check he was ok. I was just in time for the post! Wow…another bumper delivery.

Love from Gloucester Place
Love from Gloucester Place

Thank you to my sisters old neighbours for a fab selection of goodies. He was eating the popping candy before we had even opened the next envelope!

Big Moshi hugs from Amy, Mollie, Seb, Ollie and James
Big Moshi hugs from Amy, Mollie, Seb, Ollie and James

A fab iTunes card for Rufus & Herb from Amy, James, Seb, Ollie and Mollie ( Rufus knew exactly what he wanted – minecraft) and then a costa gift card for us! We are very grateful.

Knock knock...
Knock knock…

A wonderful set of jokes written by my class and sent by Linz. I read them with mixed emotions. Great to see Herbie enjoying post from them but sadness that I can’t be doing my job and being their teacher.
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Herbie’s outreach teacher has sent some fun things to play with and Herbie followed me round demanding I chose a colour or letter. He smiled at her letter and announced “I’m watching Victoria, always watching !”
More Gloucester Place friends of Char & Mats sent two beautiful books. We can’t wait to look at them. Thank you Toby and Edward xxx ( and Rachel & Mark ) xx
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Brilliant boys colouring for a brilliant boy!
Brilliant boys colouring for a brilliant boy!

A brilliant gift from fellow villagers Chloe, Kevin, Esme & Phoebe. We look forward to a few quieter days after today, filled with colouring, books and Lego. Thank you xxx

Happy smiley people!
Happy smiley people!

A huge smile for a letter, cards and things to do from his best buddies Lily & Sam. He couldn’t stop looking at it and the cards took their place on the door. “I miss Lily & Sam” he said with a huge sigh.

Hello again Hope!
Hello again Hope!

Another letter from Hope, “read it mummy read it!” Somebody was keen, “she’s really kind and pretty” he announced! Thank you Tanya & Hope, he’s loving your letters and he says ‘none of my teeth have fallen out yet and your Katsuma picture is awesome!”

I returned to see Rufus after the mammoth post opening, he was still looking pale and not great but we got the call that his harvested cells were on their way to Robin Ward and as a special treat he could go and watch them go into Herbie! So off we went with great excitement. Suddenly we were all in the room together for the first time in 10 days!
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Then it was time! The cells arrived with ward sister Rosie (Herbie affectionately calls her The Boss) and our nurse for the day, Ella.
Checks were carried out as per protocol…

Tell me your name and date of birth!
Tell me your name and date of birth!

And then the big moment when the pump was activated by the super hero of the moment and transplant began!
It took 2+ hours to infuse during which time we all could stay together in the cubicle.
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All in!
All in!

Then there was time for Rufus to proudly show his battle scars before heading back to Lion Ward to gather his things and have a set of obs before discharge.
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Whilst I was with Rufus I missed the Friday consultant round but Dan says Paul Veys said it was all going well and he was very pleased so so are we! He also commented on my organised whiteboard which pleased me no end…hehe.

Rufus enjoyed his final hour on Lion Ward with his nurses Sophie and student nurse, Yasmin. He really took a shine to. Yasmin and she even let him do her obs too!
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Then we headed back to wait in reception, by the fish pond!
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Ru needed some pain killers as he was still sore but it didn’t seem to stop him having fun. He was very tired and emotional when we finally said farewell.
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I miss my other three so much and hate not knowing when we will see each other again.

I must mention that Ru had a few gifts to open today, thank you Gay , our lovely friends the Abbotts and Cathryn. Sadly the gifts I ordered for him from Amazon were signed for and locked in GOSH postal store until Monday morning!
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By  Cathryn Jeff art
By Cathryn Jeff art

Back in room 2 Herbie was thrilled get ANOTHER load of Moshi gifts as promised in an email the day before from Auntie Cathy. One thoroughly happy boy (and a couple of gifts for mummy and daddy too! Anyone for Rocky Road? Yummy!)
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2 thoughts on “Day zero and a couple of heroes”

  1. So glad to hear day zero has gone OK. The strength of character of all your children is a true testament to you and Dan.

    I hope Herbie is doing OK today….. Hope loved to see him with her letter.

    Holding each and every one of you in my thoughts

    xx

  2. What an emotional day, Teach. I am in tears after reading about day zero. Rufus and Herbie are so brave and they both look so good. Much love and tons of prayers!!!

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