It’s all about family…


I have already blogged many times that during our 9 week stay in GOSH I had the privilege to make some new friends and we often chatted in the Robin Ward kitchen, used by parents from Robin and Fox Wards. Sometimes it was a passing “hello, how’s your son/daughter doing today?” as we made a cup of tea , washed up a plate or came to grab something from the fridge. Other times it was a longer , more in depth conversation about the process of BMT, the drugs, the side effects and occasionally, with those I got to know better, it was about family and how they reacted, behaved etc. There were many different scenarios, although most children there having BMT had suffered cancer or leukaemia, some had rare immune deficiencies like Herbie. There were also many different family/friend scenarios and I realised quite early on how lucky we were.

Those who know us well know that we are incredibly lucky to have an amazingly supportive family. Both sets of parents live very locally to us and all four are very “hands on” when it comes to being grandparents. When we spent our three weeks together at the start of the BMT it was our parents who stepped up as interim carers, taking on roles and jobs they clearly had the credentials for having raised 6 children between them. We know they had some lovely times with the children but they also got the backlash of our absence and the emotional outpourings that were inevitable from three children aged 11 and 6 whose parents were away looking after their baby brother! It’s important to know that they were also dealing with their own worries about us as their children and obviously Herbie! We can’t thank them enough, even know we know they will play their part down as “just what we do”. Let me tell you, after talking to lots of people in the same boat as us it’s not what all grandparents do!
As well as having grandparents helping us we also had our siblings and their other halves. Between us we have 5 siblings, all of whom are married so we had a sibling team of 10. They were there helping us in a plethora of ways from collecting children from school to organising a deep clean of our house prior to Herbie’s release. Parcels, phone calls, Face Time, text messages, meals, treats, fundraising with girls for our local hospital The John Radcliffe, you name it, they covered it! Don’t forget that 4 of them (along with Dan) are running 10K for GOSH in September. Plenty of time to sponsor them … Just click below.
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We couldn’t do it without them.
Our extended family have also been fantastic! Aunties and Uncles, cousins all chipping in and helping out.
My mum also mentioned how much it meant to her and my dad (and I know that Dan’s parents would say the same) when people stopped and asked how Herbie was or were complimentary about the strength of our families.
We are incredibly lucky to have such wonderful people around us.

So on Day 62 we trickled along quite happily.
Herbie patiently awaited the children from his school who were walking back from the church via the fields behind our house. From his treehouse he waved like royalty as the school passed by shouting “Herbie ” and ” we love you and miss you” whilst waving frantically!
His face was a picture of happiness x

Other than that the day passed uneventfully, just more eating and drinking, shouts of “I’m hunjey” and plenty of Xbox and Skatooney. I would be worried about the amount of TV and Xbox he’s having at the moment but then I think it’s so hot outside it’s better he stays in and doesn’t get exposure to the sun!

So I’ve decided, in place of the daily bloods I will give you a daily BMT fact…

Today’s BMT fact.
A basic BMT costs in the region of £250,000. (And people knock the NHS!)

And I’ll leave you with a random BMT quote from Herbie…

Today’s random BMT quote from Herbie as we talked about the new cells growing and telling Herbie’s body what to do.

“so if I’d had Frank’s bone marrow (Frank is our cat!) instead of Ru’s do you think I would be walking on four legs by now?”


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