Dangling a carrot


It’s incredibly hard being in hospital when Herbie appears so well! He’s bouncy, reasonably happy (apart from the being in hospital bit!) and drinking well and eating too (although GOSH BMT kitchen food is streaks ahead of the JR).

Dan spent most of the day with Herbie in Room 5 on Bellhouse Drayson. Not much happened apart from the clown arrived to make a balloon sword and a balloon motorbike (apparently!)

When I arrived  he was thrilled that I was clutching his copy of Rio 2 and that joined his viewing list!

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It was a slow day news wise. He managed the whole day without a fever. It seemed obvious to me that the TAZ had been stopped too early previously. I was chatting to Dan about it and saying maybe it wasn’t viral after all when Professor Pollard and Dr. Truck from the ID team arrived. Prof Pollard then said exactly what I had said to Dan! He said he felt whatever it was was bacterial and TAZ sensitive so he wanted to make sure he got enough BUT he wanted to get us home, he hoped if we were willing to learn to administer the TAZ that it would be tomorrow. Yippee! He said it could be something in the chest or sinuses, an x ray tomorrow could rule out the chest.

However the excitement was soon dampened, the dangling carrot seemed a little farther away after a chat with our nurse who said learning to give the iv needed a specialist teacher and time, she felt home tomorrow was unrealistic. (As I had also suspected!)

When I was coming back up the stairs to the ward after visiting the shop I bumped into Dr Kelly, another of my favourite doctors and one that has been through most of this journey with us. He is such a kind and gentle doctor and I always feel so at ease talking to him. We chatted about Herbie, transplant, Lily etc. I do feel lucky that we have such a great local team.

Herbie had his Hickman Line dressing changed on his request and then settled down to a few dvd’s.

View from our bedroom window
View from our bedroom window

I spent the evening watching Netflix (the TV goes off just before 8pm here so the ipad, Netflix, iplayer etc are essential!)

Can’t believe that yesterday was my 100th post on the blog! I guess I need to end this one with another interesting fact, you will like this I think…

Blood has a gender: a quick school biology refresher: In humans, whether a person is male or female is determined by their two sex chromosomes. Females have two X chromosomes and males have an X chromosome and a Y chromosome. Gender is present in the immune system and blood-forming cells, so if a male has blood from a female their blood is now female.

Apparently a female patient with a male donor has a lower risk of graft-vs.-host disease than other gender combinations. A male patient with a female donor, in contrast, is more likely to get GVHD because the transplanted female cells can recognize the male recipient’s tissues carrying a Y chromosome as foreign and attack the tissues.

Herbie had an optimal transplant of same gender, family donor and same blood group! His blood stayed male but I know that most of the other transplanted children I met had the opposite to themselves. So interesting!

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